{"id":75293,"date":"2012-12-06T13:45:31","date_gmt":"2012-12-06T13:45:31","guid":{"rendered":"https:\/\/bm.dev.synology.me\/?p=75293"},"modified":"2026-04-03T09:32:15","modified_gmt":"2026-04-03T09:32:15","slug":"retea-de-suport-pentru-sindromul-dravet","status":"publish","type":"post","link":"https:\/\/bm.dev.synology.me\/?p=75293","title":{"rendered":"Re\u0163ea de suport pentru sindromul Dravet"},"content":{"rendered":"<p>\u00cent\u00e2lnirea, organizat\u0103 de Asocia\u0163ia pentru Dravet \u015fi alte Epilepsii Rare \u00een parteneriat cu compania farmaceutic\u0103 Desitin Pharma Rom\u00e2nia, a avut ca scop crearea unui nucleu multidisciplinar de medici care s\u0103 se ocupe de pacien\u0163ii cu sindrom Dravet din Rom\u00e2nia, s\u0103 stabileasc\u0103 un plan de ac\u0163iune pentru aceste cazuri \u015fi s\u0103 schi\u0163eze un prim ghid de diagnostic, respectiv de tratament \u015fi interven\u0163ie.<\/p>\n<p>Sindromul Dravet este o form\u0103 foarte rar\u0103 \u015fi incurabil\u0103 de epilepsie, \u00een care, \u00een afar\u0103 de crizele specifice, apar \u015fi diferite alte manifest\u0103ri cum ar fi \u00eent\u00e2rzieri \u00een dezvoltare, tulbur\u0103ri ale mersului \u015fi echilibrului, tulbur\u0103ri de alimenta\u0163ie \u015fi altele.<\/p>\n<p>\u00cen Rom\u00e2nia, sunt cunoscute circa 40 de cazuri, \u00eens\u0103 boala este mult subdiagnosticat\u0103. Pe plan interna\u0163ional, se consider\u0103 c\u0103 inciden\u0163a sindromului Dravet variaz\u0103 \u00eentre 1 din 20.000 \u015fi 1 din 40.000 de copii.<\/p>\n<p><a href=\"http:\/\/www.mediafax.ro\/social\/retea-de-suport-pentru-sindromul-dravet-10360916\">Cititi mai multe pe<\/a> www.mediafax.ro<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Aproximativ 30 de medici cu diverse specializ\u0103ri, provenind de la cele mai importante centre medicale din \u0163ar\u0103, au participat vineri la o mas\u0103 rotund\u0103 cu tema \u201eCrearea re\u0163elei de suport pentru pacientul cu sindrom Dravet \u015fi familia sa\u201d.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[510],"tags":[30217,30218,17346],"class_list":["post-75293","post","type-post","status-publish","format-standard","hentry","category-actualitate","tag-dravet","tag-retea-de-suport","tag-sindrom"],"_links":{"self":[{"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/posts\/75293","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=75293"}],"version-history":[{"count":1,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/posts\/75293\/revisions"}],"predecessor-version":[{"id":88771,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/posts\/75293\/revisions\/88771"}],"wp:attachment":[{"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=75293"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=75293"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=75293"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}