\nScrisoare deschis\u0103 este semnat\u0103 de Federa\u0163ia Asocia\u0163iilor Bolnavilor de Cancer.<\/p>\n
\n\u201ePacien\u0163ii cu cancer nu cer privilegii. Cer \u015fanse egale la via\u0163\u0103. Pacien\u0163ii oncologici au nevoie de fapte, nu doar de promisiuni. Ast\u0103zi, Rom\u00e2nia p\u0103\u015fe\u015fte \u00eentr-o nou\u0103 etap\u0103 politic\u0103 \u015fi social\u0103, odat\u0103 cu \u00eenvestirea domnului Nicu\u015for Daniel Dan \u00een func\u0163ia de Pre\u015fedinte al Rom\u00e2niei. \u00cen numele Federa\u0163iei Asocia\u0163iilor Bolnavilor de Cancer, dorim s\u0103 transmitem un mesaj sincer de felicitare \u015fi speran\u0163\u0103. \u00cei dorim succes \u00een aceast\u0103 misiune complex\u0103, dar esen\u0163ial\u0103 pentru viitorul \u0163\u0103rii. Avem \u00eencredere c\u0103 experien\u0163a, abordarea metodic\u0103 \u015fi cunoa\u015fterea profund\u0103 a realit\u0103\u0163ilor societ\u0103\u0163ii rom\u00e2ne\u015fti vor reprezenta o baz\u0103 solid\u0103 pentru construirea unui stat \u00een care fiecare cet\u0103\u0163ean conteaz\u0103 \u2014 iar printre ace\u015fti cet\u0103\u0163eni, pacien\u0163ii oncologici au nevoie, poate mai mult ca oric\u00e2nd, de sprijin, protec\u0163ie \u015fi acces real la servicii de s\u0103n\u0103tate care s\u0103 le redea speran\u0163a pierdut\u0103 in 35 de ani\u201d, scrie \u00een document.<\/p>\n
\nPacien\u0163ii cu cancer \u00eei cer pre\u015fedintelui s\u0103 reformeze sistemul.<\/p>\n
\n\u201ePacien\u0163ii cu cancer au nevoie de un sistem de s\u0103n\u0103tate care s\u0103 le salveze vie\u0163ile, nu s\u0103-i pun\u0103 pe liste de a\u015fteptare. Domnule Pre\u015fedinte, v\u0103 adres\u0103m cu respect c\u00e2teva dintre priorit\u0103\u0163ile pe care sistemul de s\u0103n\u0103tate le are fa\u0163\u0103 de cei care lupt\u0103 zi de zi cu aceast\u0103 boal\u0103 grea:<\/p>\n
\n-Aprobarea mai rapid\u0103 a noilor terapii oncologice \u015fi integrarea acestora \u00een programele na\u0163ionale de s\u0103n\u0103tate<\/p>\n
\n-Finan\u0163area sustenabil\u0103 a Programului Na\u0163ional de Oncologie, cu accent pe preven\u0163ie, diagnostic timpuriu \u015fi tratamente inovatoare<\/p>\n
\n-Simplificarea accesului la investiga\u0163ii esen\u0163iale, inclusiv imagistic\u0103 de \u00eenalt\u0103 performan\u0163\u0103 \u015fi testare genetic\u0103<\/p>\n
\n-Sprijinirea dezvolt\u0103rii registrelor de pacien\u0163i, pentru o mai bun\u0103 monitorizare a bolii \u015fi eficientizarea deciziilor medicale<\/p>\n
\n-Reintegrarea profesional\u0103 \u015fi social\u0103 a supravie\u0163uitorilor de cancer \u015fi protejarea acestora prin politici publice clare<\/p>\n
\n-Recunoa\u015fterea \u015fi sus\u0163inerea navigatorului de pacien\u0163i ca verig\u0103 esen\u0163ial\u0103 \u00een traseul medical oncologic<\/p>\n
\n-Un cadru legislativ coerent pentru asigurarea dreptului la a doua opinie medical\u0103 \u00een oncologie<\/p>\n
\n-Sprijin constant pentru organiza\u0163iile de pacien\u0163i, ca parteneri activi \u00een reformarea sistemului.<\/p>\n
\n\u00centr-un stat modern, demnitatea vie\u0163ii trebuie s\u0103 fie prioritar\u0103. Cancerul nu a\u015fteapt\u0103, nu \u0163ine cont de birocra\u0163ie sau de proceduri. Reforma sistemului de s\u0103n\u0103tate nu poate fi am\u00e2nat\u0103\u201d, mai scrie \u00een document.<\/p>\n
\nCancerul nu este doar problema pacientului sau a familiei acestuia, este problema \u00eentregii societ\u0103\u0163i, avertizeaz\u0103 pacien\u0163ii.<\/p>\n
\n\u201eFedera\u0163ia Asocia\u0163iilor Bolnavilor de Cancer r\u0103m\u00e2ne deschis\u0103 dialogului \u015fi colabor\u0103rii. A\u015ftept\u0103m cu speran\u0163\u0103 un suflu nou \u00een guvernare, un nou tip de leadership care s\u0103 aduc\u0103 \u015fi domeniul oncologic \u00een prim-planul agendei preziden\u0163iale \u015fi na\u0163ionale. Credem \u00eentr-un viitor \u00een care pacien\u0163ii rom\u00e2ni s\u0103 beneficieze de acelea\u015fi \u015fanse ca cei din alte state europene. Ne exprim\u0103m deschiderea total\u0103 de a contribui, prin dialog, expertiz\u0103 \u015fi experien\u0163a direct\u0103 a pacien\u0163ilor, al\u0103turi de corpul medical, la conturarea politicilor publice \u00een domeniul oncologiei. Sper\u0103m ca mandatul dumneavoastr\u0103, domnule Pre\u015fedinte, s\u0103 fie unul al solidarit\u0103\u0163ii, al eficien\u0163ei \u015fi al umanit\u0103\u0163ii \u015fi s\u0103 ne scoat\u0103 din statisticile negative europene! Ne dorim intrarea \u00eentr-o minim\u0103 normalitate a sistemului medical rom\u00e2nesc, prin eliminarea discrimin\u0103rii \u015fi asigurarea egalit\u0103\u0163ii de \u015fanse fa\u0163\u0103 de ceilal\u0163i pacien\u0163i europeni\u201d, au precizat reprezentan\u0163ii Federa\u0163iei Asocia\u0163iilor Bolnavilor de Cancer.<\/p>\n","protected":false},"excerpt":{"rendered":"
Pacien\u0163ii cu cancer i-au trimis o scrisoare noului pre\u015fedinte al Rom\u00e2niei. Ace\u015ftia \u00eel felicit\u0103 pe Nicu\u015for Dan pentru pozi\u0163ia ob\u0163inut\u0103 \u00een urma alegerilor \u015fi \u00eel roag\u0103 s\u0103 se implice \u00een problema sistemului medical. Cancerul nu este doar problema pacientului, este problema \u00eentregii societ\u0103\u0163i, spun ei.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[510],"tags":[14610,408,17542],"class_list":["post-236892","post","type-post","status-publish","format-standard","hentry","category-actualitate","tag-cancer","tag-pacienti","tag-scrisoare"],"_links":{"self":[{"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/posts\/236892","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=236892"}],"version-history":[{"count":0,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=\/wp\/v2\/posts\/236892\/revisions"}],"wp:attachment":[{"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=236892"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=236892"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bm.dev.synology.me\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=236892"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}